Petitions/Fund a National Endometriosis Registry and Audit to Help Improve NHS Care
StatusClosed
Opened27 Aug 2025
Closes27 Feb 2026
Government responseResponded
Parliamentary debateNot eligible
Milestones 10,000

We call for a National Endometriosis Registry to record, track and annually audit data on diagnosis, treatment & outcomes. We think this could help to: Hold services to account; Reduce postcode inequality; Ensure endometriosis is treated as a chronic condition with more timely, effective care

Leading charities estimate it takes almost 9 years on average in the UK to be diagnosed with endometriosis, which can cause avoidable pain and mental health struggles, and is linked to fertility problems. We believe that systems to track diagnosis, treatment, or outcomes are inadequate, and that there are limited ways to see where care may be failing or to measure improvement. We think other countries have proven that registries and audits can improve care, shorten delays, and drive research.

10,644Total signatures
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Government response

There are no current plans to develop an endometriosis registry, but the Government acknowledges the challenges and has made progress towards improving endometriosis diagnosis, treatment and care.

Constituency engagement ranking

Andrew Bowie
1Andrew Bowie MP
West Aberdeenshire and Kincardine
143
Steve Barclay
2Steve Barclay MP
North East Cambridgeshire
74
Michael Wheeler
3Michael Wheeler MP
Worsley and Eccles
59
Bill Esterson
4Bill Esterson MP
Sefton Central
49
Jo Platt
5Jo Platt MP
Leigh and Atherton
46
Kim Johnson
6Kim Johnson MP
Liverpool Riverside
46
Emma Hardy
7Emma Hardy MP
Kingston upon Hull West and Haltemprice
45
Rebecca Long Bailey
8Rebecca Long Bailey MP
Salford
43
Jamie Stone
9Jamie Stone MP
Caithness, Sutherland and Easter Ross
43
John Grady
10John Grady MP
Glasgow East
39
Fund a National Endometriosis Registry and Audit to Help Improve NHS Care — Petitions