Introduce a clear national opt-out for NHS data processed in the Federated Data Platform (FDP) and National Data Integration Tenant (NDIT) and require a full public consultation before any further expansion of these systems.
The NHS is planning to move from multiple, separate systems to a new national data architecture. Technical documents show national processing of identifiable data, while public explanations may describe only anonymous or aggregate use. As these systems are still being rolled out, we believe the public should have transparency, a clear opt-out and the chance to respond before further expansion.
Government response
The National Data Opt-Out does not apply to the NDIT or FDP as data use supports direct care, is legally required or is anonymised. National public engagement is shaping changes to the opt-out system.