StatusOngoing
Opened5 Aug 2026
Closes—
Government response—
Parliamentary debateNot eligible
Milestones—
Give Edwards / Trisomy 18 — including mosaic forms — same legal recognition & guaranteed NHS care pathways as Down’s Syndrome Act 2022. End unfair, unsafe gaps: no automatic discharge; ensure named neuro disability leads & joined up lifelong care based on need, not diagnosis name.
Edwards / Trisomy 18 — including mosaic — is lifelong, complex & multi system, but no legal duty like Down’s Syndrome Act 2022. Often wrongly called “short term”, leading to unsafe early discharge from therapies & paediatrics, no named neurodisability lead & preventable harm. Support should follow need, not diagnosis prevalence. Equal law = equal safe, joined up care.
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Constituency engagement ranking
1Lucy Powell MP
Manchester Central2Debbie Abrahams MP
Oldham East and Saddleworth3Graham Stringer MP
Blackley and Middleton South4Hannah Spencer MP
Gorton and Denton5Sojan Joseph MP
Ashford6Naz Shah MP
Bradford West7Sir Christopher Chope MP
Christchurch8Danny Kruger MP
East Wiltshire9Naushabah Khan MP
Gillingham and Rainham10Mike Wood MP
Kingswinford and South Staffordshire