Petitions/Pass law to require authorities to meet needs of people with Edwards' syndrome
StatusOngoing
Opened5 Aug 2026
Closes
Government response
Parliamentary debateNot eligible
Milestones

Give Edwards / Trisomy 18 — including mosaic forms — same legal recognition & guaranteed NHS care pathways as Down’s Syndrome Act 2022. End unfair, unsafe gaps: no automatic discharge; ensure named neuro disability leads & joined up lifelong care based on need, not diagnosis name.

Edwards / Trisomy 18 — including mosaic — is lifelong, complex & multi system, but no legal duty like Down’s Syndrome Act 2022. Often wrongly called “short term”, leading to unsafe early discharge from therapies & paediatrics, no named neurodisability lead & preventable harm. Support should follow need, not diagnosis prevalence. Equal law = equal safe, joined up care.

10,000
100,000

Constituency engagement ranking

Lucy Powell
1Lucy Powell MP
Manchester Central
7
Debbie Abrahams
2Debbie Abrahams MP
Oldham East and Saddleworth
6
Graham Stringer
3Graham Stringer MP
Blackley and Middleton South
2
Hannah Spencer
4Hannah Spencer MP
Gorton and Denton
2
Sojan Joseph
5Sojan Joseph MP
Ashford
1
Naz Shah
6Naz Shah MP
Bradford West
1
Sir Christopher Chope
7Sir Christopher Chope MP
Christchurch
1
Danny Kruger
8Danny Kruger MP
East Wiltshire
1
Naushabah Khan
9Naushabah Khan MP
Gillingham and Rainham
1
Mike Wood
10Mike Wood MP
Kingswinford and South Staffordshire
1